"Not feeling well" MS version pt. 4

Just for the record....

Most of the time when I say “I am not feeling well,” it is because I have something on top of the MS.

When I say I'm "just fine" it usually means I'm MY normal...struggling but doable!

If I say I'm "not so great" it just means it’s a bad day for my MS. For me, maybe it was just the stress from yesterday, a lack of sleep, or the heat of the day that is causing me to not feel well. It may mean I'm dealing with new or unusual symptoms which I'm stressing about. In any case, that means I am extremely fatigued (more so than usual), dizzy, unable to see clearly, in pain, cannot think straight, and/or too weak to want to do anything but lie down.

I know...everyone gets sick and rundown; but you have to realize, with MS it really is different.

Yes, I am ALWAYS tired; I battle fatigue every single day, but like all my other symptoms, some days are worse than others.

Simply put, it’s no different than pain. Maybe you just got a paper cut? Or maybe you broke your arm? Both “hurt” but one hurts objectively worse.

So when I say, “I don’t feel well” and then you say, “you never feel well” (besides being rude and unkind) you are not understanding that there are varying levels of severity of the symptoms that I live with, and despite me looking like nothing is wrong, these symptoms...though they were not too bad yesterday...or an hour ago...might just be killing me right now.

So...sorry if how I feel is so complicated. Sorry if it's inconvenient for you. Sorry if plans have to change, or if I seem wimpy and whiney to you.

Seriously...I'm doing my best every day!

I'm just sayin' 😷