So what to do?
In some ways, I have chosen to shut myself off from "normal" life, knowing that the isolation takes its toll, but not willing to inflict this part of my disease on innocents (and not being able to have the ongoing energy necessary to prevent the inevitable).
I think it’s important to talk to your family and friends about it, if they are willing to really listen.
My daughter is often more aware of it all than I even am, and she blesses me with her loving, understanding heart. She has a huge capacity to forgive her mom!
I've tried to explain to a few others, but have felt as if they don't even try to begin to "get it". So, I either limit time with them or use all my energy to make time with them "OK".
It isn't always easy, to be so aware of yet another "MS thing", especially one that would NOT be socially understood and one that can take away so much from me; but, just being mindful that it’s an issue has seemed to help me (at least some of the time). It’s not an excuse, it’s informing myself and others, and using that information to help me move through my day-to-day life.
I need to allow myself to be ok with saying “Hey, I have this problem related to my MS.” It may sound like a convenient excuse to others, but it is a real issue...one I deal with EVERY SINGLE DAY.
I'm just sayin' 😐
😙😙😙😙😙😙
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